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Reports archive

This page holds all NCIN reports which were published before January 2013.

For more recent reports and data briefings, see our publications pages.

Haematological malignancies in England: Cancers Diagnosed 2001-2008 (December 2012)

This is the first report to present national haematological cancer analyses at individual disease group level. Many haematological malignancies are rare and as such are difficult to analyse in a meaningful way at a sub-national level. This report provides an opportunity to look at incidence, mortality and survival for these and other haematological malignancies. The incidence and mortality data reported cover the period 2001 to 2008. The survival analyses cover a range of different time periods commencing in 1995 in order to allow survival trends to be identified. These data have been quality assured against a number of existing data sources as far as is possible. However, as there are no other national analyses available for many of these disease groups, the nearest equivalents have been used.

Overview of Ovarian Cancer in England: Incidence, Mortality and Survival (November 2012)

This report presents the latest time trends, trends by age and deprivation, and regional variations in incidence, mortality and survival for invasive ovarian cancer in England. There is also a separate section on these cases stratified according to their main morphological groups. A National Cancer Intelligence Network (NCIN) Data Briefing, 'A profile of ovarian cancer in England' which highlights some of the key findings in this report, is available. This report and briefing have been produced by Trent Cancer Registry, the NCIN’s lead registry for gynaecological cancers, on behalf of the NCIN Gynaecological Site Specific Clinical Reference Group (SSCRG). These data should be of interest to all those involved in the commissioning and delivery of services to prevent, diagnose, and treat ovarian cancer.

Haematological malignancies & cancer registration in England (2004-2008) - 7.44MB download (November 2012)

Concerns have been raised in both clinical and research communities that traditional cancer registration systems are failing to ascertain a significant number of haematological malignancies. To investigate this possibility an evaluation comparing registration data held by the National Cancer Data Repository (NCDR) with that of a high quality specialist haematological population-based regional registry – the Haematological Malignancy Research Network ( – has been carried out.

One-year relative survival rates for patients diagnosed with cancer of the oesophagus, stomach, primary liver, gallbladder, biliary tract and pancreas in England, 1985-2009 (October 2012)

The National Cancer Intelligence Network (NCIN) Upper Gastrointestinal Cancer Site Specific Clinical Reference Group (UGI SSCRG) is responsible for analyses of national data for oesophago-gastric (OG) cancers (including oesophageal and stomach cancer) and primary hepatic, pancreatic and biliary cancers (including primary liver, biliary tract, gallbladder and pancreatic cancer). Thames Cancer Registry is the lead registry for the UGI SSCRG. Survival for patients with these cancer types is lower in England than in Europe. This report aims to investigate whether one-year survival for men and women in England has improved.

Rare urological cancers (October 2012)

Rare urological cancers are defined here as cancer of the penis, testes, ureter & renal pelvis, plus bladder cancers of the non-transitional cell type and prostate cancer of the small cell type. Reports regarding these malignancies are uncommon, possibly due to their comparative rarity when compared with other malignancies. This report attempts to address this imbalance and be a source of information for clinicians, commissioners, charitable bodies and those with an interest in this group of tumours.To determine whether the incidence, mortality and survival rates for the rarer tumours is actually changing, and whether there is variation over the time periods studied, the NCIN Urology SSCRG has commissioned a breakdown report on these rare urological cancers in England.

Mortality from prostate cancer (October 2012)

Prostate cancer is the second biggest cancer killer for men, after lung cancer. In 2009 there were 10,292 prostate cancer deaths in the UK: 8,755 deaths in England, 205 in N. Ireland, 790 in Scotland and 542 in Wales. This compares to 19,319 deaths from lung cancer in men in the UK.

Profile of Cervical Cancer in England Incidence: Mortality and Survival (October 2012)

This report results from collaboration between the NHS Cervical Screening Programme and Trent Cancer Registry as the National Cancer Intelligence Network’s lead registry for gynaecological cancers. It shows the latest time trends, trends by age and deprivation, and regional variations in incidence, mortality and survival for invasive cervical cancer in England. There is also a separate section on these cases stratified according to their main morphological groups. It should be ofinterest to all those involved in the commissioning and delivery of services to prevent and treat cervical cancer.

Bone Sarcoma Incidence & Survival. Tumours diagnosed between 1985 and 2009 (October 2012)

Primary bone sarcomas are an exceptionally rare form of cancer, accounting for only 0.2% of all malignancies diagnosed in England. Primary bone cancers represent a challenge as they are rare and best practice guidelines state that they should be treated within high caseload centres. There are many different types of bone sarcoma, of which osteosarcoma, chondrosarcoma, chordoma and Ewing’s sarcoma are the most common and collectively account for over 85% of all tumoursdiagnosed. Other relatively uncommon bone sarcomas account for approximately 6% of malignancies diagnosed in patients under the age of twenty. There are few reports which examine the incidence and outcome of patients with a primary bone cancer. This report considers the four most common variants of bone sarcoma and presents incidence and survival data according to the age of the patient at diagnosis and the cancer site. Survival rates are also presented for the mainanatomical sub-sites.

Survival in Teenagers and Young Adults with Cancer in the UK (August 2012)

There is evidence that outcomes in TYA cancer patients, as measured by survival rates, are sometimes not as good as those for children. Poorer survival for males than females have also been reported for certain types of cancer. In the light of this evidence, we decided to undertake a detailed study of survival rates in TYA with cancer in the UK, comparing these with outcomes in children and in adults diagnosed between 25 and 49 years of age. Outcomes are also compared by gender. This report has been written by NWCIS and the TYA National Intelligence Advisory Group, which is an informal group of interested clinicians and epidemiologists who support NWCIS in their TYA work.It has been produced under the auspices of the NCIN and the Childhood and TYA Clinical Reference Group.

Recurrent and Metastatic Breast Cancer Data Collection Project Pilot report (March 2012)

This report describes the rationale, findings and recommendations of a pilot project undertaken on collection of data on recurrent and metastatic breast cancer. It is estimated that around 550,000 people are alive in the UK after a diagnosis of breast cancer, but it is unknown how many of them have recurrent or metastatic disease. The lack of information on recurrence and metastasis of breast cancer means that the effectiveness of treatments for primary cancers cannot be adequately assessed and the care of patients with recurrent and metastatic cancer cannot be fully evaluated. This makes it difficult to plan and resource services for this group of patients.

Improving outcomes: a strategy for cancer - NCIN information supplement (June 2011)

This supplement summarises some of the information and evidence that has been used to inform the development of the Improving Outcomes: A strategy for cancer and highlights the extent to which variations in the quality of cancer services and outcomes continue to vary.

How is the NCIN changing what we know about cancer? (June 2011)

This document highlights some of the information the NCIN (with its partners) has recently produced to help improve information on, and themeasurement of, cancer outcomes in the UK.

NHS treated cancer patients receiving major surgical resections (March 2011)

England | 2004-2006 | Percentage by age, sex and cancer network

This initial report on major surgical resections in England presents the percentage of NHS treated cancer patients who received a major resection as part of their treatment. The report contains results for thirteen cancer sites and covers patients diagnosed during 2004-2006 who were followed up to 2007. Percentages are presented by sex, age, deprivation quintile and cancer network, with funnel plots depicting both percentages and indirectly age-standardised ratios by cancer network. Cancer networks have been assigned by the residence of patients at time of diagnosis. These data provide a basis to instigate further exploration of major surgical resections for cancer patients and to encourage improved recording and sharing of data to allow further analyses to be produced.

An Excel spreadsheet of the OPCS4 codes used within this report is available.

A post on the Cancer Research UK Science Update Blog also discusses this work.

Cancer survival by primary care trust (December 2011)

England by PCT | 1996-2009 and followed up to 2010 | All cancers survival index

This bulletin presents updated estimates of a cancer survival index at one year after diagnosis for all cancers combined in each of 151 Primary Care Trusts (PCTs) in England, for patients diagnosed during 1996-2009 and followed up to 31 December 2010. The survival index is adjusted for differences in the profile of cancer patients by age, sex and type of cancer between PCTs.

Cancer survival by Primary Care Trust: charts, tables and maps

Cancer survival by cancer network (December 2011)

England by cancer network | 1996-2009 and followed up to 2010 | One and five year relative survival

This report presents one-year and five-year age-standardised net survival estimates (see background note 3) for the 28 Cancer Networks of England, for patients who were diagnosed with a cancer of the oesophagus, stomach, colon, lung, breast (women) or cervix during 1996–2009 and followed up to 31 December 2010. One-year survival estimates are reported for patients diagnosed in 1996, 2001, 2005 and 2009, and five-year survival for those diagnosed in 1996, 2001 and 2005.

Charts, tables and maps to accompany the release are also available from ONS.

One, Five and Ten-year Cancer Prevalence (June 2010)

UK by cancer network | 2006 | Crude and age standardised proportions

Cancer prevalence results for all cancers combined and for 22 common cancers. These UK figures are broken down by cancer network for England and Scotland with national estimates for Wales and Northern Ireland. These data show the variation in the number of males and females who are still alive up to one, five and ten years after a cancer diagnosis. Report prepared for Macmillan Cancer Support by Thames Cancer Registry.

You can also access the cancer prevalence information using our Prevalence e-Atlas. This is an interactive tool which uses maps, charts and data tables to display cancer prevalence data by cancer network for the UK.

In addition, one-year and five-year cancer prevalence estimates by PCT were previously calculated by Thames Cancer Registry. These estimates are available for all malignant neoplasms, breast, colorectal, lung and prostate cancers as of 31st December 2004. These data are available from the APHO website.

Cancer Incidence and Survival By Major Ethnic Group (June 2009)

England | 2002-2006 | Incidence rate ratios and estimated ASRs

The first national analysis for twenty-one different cancer sites or groups, presenting cancer incidence by ethnic group in England. This report also includes data on cancer survival by ethnic group for the four largest cancer sites. Joint report with Cancer Research UK in collaboration with the London School of Hygiene and Tropical Medicine.

The Excess Burden of Cancer in Men in the UK (June 2009 - Updated August 2010)

UK | 2006 (incidence) 2007 (mortality) | Incidence and mortality rate ratios

This publication presents analyses of the increased cancer incidence and mortality rates in males compared to females. Joint report with Cancer Research UK, The Centre for Men's Health at Leeds Metropolitan University and the Men's Health Forum.

Cancer Incidence by Deprivation (December 2008)

England | 1995-2004 | Excess cases and changes in ASR between deprivation quintiles

This report analyses twenty-four different cancer sites or groups and presents results showing the change in incidence rates between socio-economic quintiles, as well as estimating the excess cases caused by deprivation.

Cancer Incidence and Mortality (October 2008)

UK by cancer network | 2005 | Crude rates and ASRs

NCIN's first UK wide report showing differences in age-standardised incidence and mortality rates for twenty-two cancer sites or groups.

For more up to date information on cancer incidence and mortality, see the Cancer e-Atlas.

One Year Cancer Survival (October 2008)

England by cancer network | 1985-2004 | England trends over time and cancer network funnel plots

Trends over time and funnel plots showing variations between cancer networks in one year relative survival rates for twenty two cancer sites or groups. Report prepared in collaboration with the London School of Hygiene and Tropical Medicine.

For more up to date information on one year cancer survival, see the cancer survival by cancer network report.

Cancer Prevalence (July 2008)

UK | 2008 | Lifetime prevalence for all cancers and colorectal, lung, breast and prostate cancers

Presentation giving estimates for cancer prevalence in England and the UK. Analysis conducted for Macmillan Cancer Support by Thames Cancer Registry.

For more detailed information on cancer prevalence, see Maddams, J. et al. Cancer prevalence in the United Kingdom: estimates for 2008. (2009), British Journal of Cancer. 101: 541–547. doi: doi:10.1038/sj.bjc.6605148.