Urological cancer resources
Reports | Posters | Presentations
Reports
This report has been published jointly by NHS England and PHE. It is a descriptive summary of responses to a pilot of Patient Reported Outcome Measures (PROMS) for Bladder Cancer.
This report examines trends in survival of kidney cancer, in England, over the most recent 20 years of data available 1990-2010. This report also endeavours to examine how one and five year survival rates of kidney cancer are influenced by sex, the histological cell type of the tumour, the grade of differentiation and the stage at presentation.
The report examines incidence, mortality and survival for the rare urological cancers. Namely: penile cancer; testicular cancer; cancer of the renal pelvis and ureter; non-TCC bladder cancer; and small-cell prostate cancer.
This report examines trends in incidence, mortality and survival of penile cancers, both malignant and penile epithelial neoplasia (PIN) (ICD10 C60 & D074) in England over the most recent 20 years of data available 1990-2009. This report also endeavours to examine treatment pathways for penile cancer including modality of treatment, an analysis of penile specific surgeries, amputation, partial amputation and reconstruction, time between curative surgery and reconstruction, whether a patient receives reconstruction and whether this is influenced by the patients’ relative level of socio-economic deprivation.
The majority of bladder cancers are transitional cell carcinomas (TCC). About 1 in 6 are not TCCs and include squamous cell carcinoma, adenocarcinoma and small cell carcinoma. It is unclear if the epidemiology of this group is different, and if their treatments and outcomes are the same.
Prostate cancer is the second biggest cancer killer for men, after lung cancer. In 2009 there were 10,292 prostate cancer deaths in the UK: 8,755 deaths in England, 205 in N. Ireland, 790 in Scotland and 542 in Wales. This compares to 19,319 deaths from lung cancer in men in the UK.
The aim of the report is to help end of life care commissioners and providers improve planning and service delivery in line with the needs and wishes of patients.People dying with a urological cancer have specific end of life care needs. The report highlights variations by cancer type, age, sex, region, place of death and socioeconomic status, which helps us understand those needs better. The report also includes information on hospital admission costs in the last year of life and how they vary by type of urological cancer.
Published by the National End of Life Care Intelligence Network, 2012
To better understand outcome measures, it is necessary to analyse what treatment pathway a patient has followed after diagnosis. Until recently it was difficult to attempt this due to the poor recording of several key data items, particularly radiotherapy. With the release of the National Radiotherapy Dataset (RTDS), recording completeness of radiotherapy data has increased. This means we are now able to take a meaningful look at the treatment pathways of each patient. Equally importantly, we can also identify the cohort of patients who have no treatments recorded, to potentially give information on active surveillance programmes.
Published by the NCIN, 2012
A report produced in partnership between the South West Public Health Observatory (SWPHO) and the National Cancer Intelligence Network (NCIN) to find out the completeness of staging information held in the National Cancer Data Repository (NCDR) for urological tumours. Quality of data recorded associated with histology, ethnicity and treatment were also addressed for prostate tumour records.
Published by the NCIN, 2012
A report produced in partnership between the South West Public Health Observatory (SWPHO) and the National Cancer Intelligence Network (NCIN) to find out the completeness of staging information held in the National Cancer Data Repository (NCDR) for urological tumours. Quality of data recorded associated with histology, ethnicity and treatment were also addressed for prostate tumour records.
Published by the NCIN, 2011
Differentiated Teratoma of the Testis - NCIN Data Briefing
This data briefing examines the epidemiology of the main types of testicular tumours and considers the likely impact of a proposed change in coding.
View the Differentiated Teratoma of the Testis - NCIN Data Briefing as a webpage or download the Differentiated Teratoma of the Testis - NCIN Data Briefing PDF.
Published by the NCIN, 2011
As lead registry for urological cancers, the South West Public Health Observatory (SWPHO) has access to national cancer registry data, Hospital Episode Statistics (HES), British Association of Urological Surgeons (BAUS) audit data and Office for National Statistics (ONS) deaths records. Using these data sources it is possible to identify people diagnosed with bladder cancer and treated by cystectomy, and follow up their status for a set period of time.
The analysis was undertaken to determine if the survival of patients after cystectomy for bladder cancer changed over the period 1999 to 2007.
Published by the NCIN, 2011
Prostate Cancer Survival - NCIN Data Briefing
As part of its work to support the NCIN Urology Site Specific Clinical Reference Group, the SWPHO produces a yearly data briefing which describes key research in a straightforward manner. This data briefing describes the differences in survival from prostate cancer, depending on the progression of the disease. It also shows survival for men after diagnosis, relative to the general population.
View the Prostate Cancer Survival - NCIN Data Briefing as a webpage or download the Prostate Cancer Survival - NCIN Data Briefing PDF.
Published by the NCIN, 2010
Prostate cancer in the South West: surveys of policies and practice
View the Prostate cancer in the South West: surveys of policies and practice abstract from this 2007 report, produced by the South West Public Health Observatory (SWPHO).
If you would like to request a copy of the full report please SouthWestKIT at phe dot gov.uk link email
the Urological Cancer Hub team.
Published by the SWPHO, 2007
Posters
British Prostate Group Winter 2006 meeting
The changing case mix of prostate cancer patients and prostatectomies in the South West - Sean McPhail et al.
Presentations
Presentation at a series of ‘Hear me now’ workshops between September and December 2013 run by the ‘Hear Me Now’ National Steering Committee (BME Cancer Communities, Cancer Black Care and the NHS BME Network working in partnership with Janssen-Cilag)
Prostate Cancer and Ethnicity
'Hear me now' workshop - Birmingham
'Hear me now' workshop - Leeds
'Hear me now' workshop - Newham
'Hear me now' workshop - Nottingham
'Hear me now' workshop - Oxford
National Cancer Intelligence Network Urological Cancer Workshop, July 2011
The national policy framework - Di Riley
BAUS audit
The cancer services and outcomes dataset - Trish Stokes
On-going and planned clinical outcome analysis - Luke Hounsome
Routes to diagnosis in urological cancers - Jon Shelton
Clinical lines of enquiry - Sue Knights
National Cancer Intelligence Network Conference 2011
Predictors of use of orthotopic bladder reconstruction after radical cystectomy for bladder cancer - Luke Hounsome
Skeletal and cardiac late effects in prostate cancer patients - Luke Hounsome
National Cancer Intelligence Network Urological Cancer Workshop, 2010
MDT Development Work Programme & Cancer Waits - Di Riley
The role of SWPHO in urological cancers analysis - Luke Hounsome
Why is co-morbidity important for cancer patients? - Michael Chapman
What is the NCIN? - Mick Peake
Using information to improve outcomes - Nicky Coombes
National Cancer Peer Review Programme - Clinical lines of enquiry - Sue Knights
The National Cancer Dataset Initiative: Urology SSCRG - Di Riley
UK Association of Cancer Registries Conference 2006
Prostate cancer in England and the South West - Sean McPhail
National work requests
Data on prostate cancer in black men; requested for the 'Hear Me Now' project
Hear Me Now 2015 data