The Macmillan-NCRAS Work Plan:

The UK Cancer Prevalence Project

The Macmillan-NCRAS UK Cancer Prevalence Project aims to break down, or ‘segment’, information on the UK cancer population so that there is a more granular understanding of them.

Overview of the UK Cancer Prevalence Project

For the first phase of this project, we have produced a spreadsheet with guidance, which provides cancer prevalence data for people diagnosed with cancer over a 20-year period (1991-2010 for England, Scotland and Wales and 1993-2010 for NI). The information provided is for all malignant cancers combined by: time since diagnosis, age, sex, UK, UK constituent country, Strategic Clinical Networks (England only) and deprivation (England only).

Phase two presented a more detailed UK cancer prevalence statistics by a range of variables for up to 47 cancer sites, sex, time since diagnosis, age at end of 2010, and age at diagnosis for UK nations and the UK combined. Local cancer prevalence statistics and prevalence data by deprivation group are also available for each UK nation.

New data is now available: We have now extended this initial work to incorporate more recent data and to estimate complete prevalence - the number of people alive on 31st December 2013 who had been previously diagnosed with cancer. Data is available for all of the UK combined and at country level. A breakdown has also been presented by time since diagnosis, age at diagnosis, sex and cancer type.

UK Cancer Prevalence Project Releases

Below are the releases related to the project, in descending order of release date.

January 2020

UK Complete Cancer Prevalence for 2013 full report – The findings of the project on estimating complete cancer prevalence for the UK nations and the whole UK.

March 2018

Cancer Prevalence in England - 21 year prevalence by demographic measures at Local Authority - This workbook was published by the Transforming Cancer Services Team (TCST) in partnership with Macmillan Cancer Support and NCRAS.

January 2018

Cancer Prevalence in England - 21 year prevalence by demographic and geographic measures - This workbook was published by the Transforming Cancer Services Team (TCST) in partnership with Macmillan Cancer Support and NCRAS.

June 2017

Updated UK Complete Cancer Prevalence for 2013 Workbook for UK nations and UK combined.

September 2016

UK Complete Cancer Prevalence for 2013 Technical Report Technical report describing the methodology used to calculate the complete cancer prevalence estimates.
UK Complete Cancer Prevalence for 2013 Workbook for UK nations and UK combined.

June 2015

Cancer Prevalence UK Data Tables for UK nations and UK combined by cancer groups, 21 common cancer sites, 47 detailed cancer sites, age, sex, TSD, age at end of 2010, age at diagnosis and deprivation scores.
Cancer Prevalence UK Summary Data Table
England Cancer Prevalence Tables for 21 common cancers – by Area Team, CCG, Local Authority, Strategic Clinical Network
Wales Cancer Prevalence Tables for 21 common cancers – by Cancer Network, Health Board, Local Authority and upper super output area
Scotland Cancer Prevalence Tables for 21 common cancers – by Cancer Network, NHS Board Area and Local Council Area
Northern Ireland Cancer Prevalence Tables for 21 common cancers – by Health and Social Care Trust and Local Government District
Macmillan-NCIN UK Cancer Prevalence Project Guidance and FAQs
Macmillan-NCIN UK Cancer Prevalence Project Maps England
Macmillan-NCIN UK Cancer Prevalence Project Maps Northern Ireland
Macmillan-NCIN UK Cancer Prevalence Project Maps Scotland
Macmillan-NCIN UK Cancer Prevalence Project Maps Wales
Macmillan-NCIN UK Cancer Prevalence Project Acknowledgements
Data briefing, June 2015: 20-year cancer prevalence in the UK: An increasingly granular understanding of the cancer population

Other June 2015 Macmillan-NCRAS prevalence outputs, hosted on the Macmillan website, on the following webpage:

http://www.macmillan.org.uk/Aboutus/Ouresearchandevaluation/Ourresearchpartners/NCIN.aspx

Press release: Cancer - not just an old-age disease: New data reveals thousands living with breast, prostate, colorectal or lung cancer who were diagnosed under age of 45
Extended data briefing, June 2015:20-year cancer prevalence in England: An increasingly granular understanding of the cancer population
Extended data briefing, June 2015:20-year cancer prevalence in Northern Ireland: An increasingly granular understanding of the cancer population
Extended data briefing, June 2015:20-year cancer prevalence in Scotland: An increasingly granular understanding of the cancer population
Extended data briefing, June 2015:20-year cancer prevalence in Wales: An increasingly granular understanding of the cancer population
Conference poster, June 2015: Examining methods to visualise the cancer population using cartograms
Conference poster, June 2015: A new way of counting cancer prevalence to understand the prevalence of multiple primaries in the UK
Conference poster, June 2015: 20-year cancer prevalence in the UK: exploring variations between short-term and long-term cancer survivors

2013/14

Conference poster, June 2014 and November 2014 - Understanding the burden and characteristics of older people living with and beyond cancer across the UK
Conference poster, June 2014 and November 2014 - UK cancer survivorship: What the data tell us about the number of children, teenagers and young adults livingwith and beyond cancer
Press release - Older people and cancer survivorship in the UK: As part of the Macmillan-NCRAS Segmentation project, we have released new analyses on older people living with and beyond cancer in the UK: "130,000 people diagnosed at 65 or over survive cancer for at least a decade".
Press release - Childhood cancer survivorship in the UK: The Macmillan-NCRAS Partnership has released new figures for the number of children currently living with cancer in the UK: "10,000 UK children living with cancer".
Dataset - Interactive Excel spreadsheet download here - Segmenting the cancer survivorship population in the UK: 20-year prevalence for the period 1991-2010 in the UK; All cancers combined (excluding non-melanoma skin cancer); for the UK and all constituent countries - England, Northern Ireland, Wales and Scotland; by time since diagnosis; age and sex; and by Strategic Clinical Network and deprivation quintile for England.
Appendix in 3rd IOSC Report - 'Improving outcomes: a strategy for cancer 3rd annual report': Appendix B comprises data from the Macmillan-NCRAS Segmentation Project.