The Macmillan-NCRAS Work Plan:

Background

The National Cancer Registration and Analysis Service (NCRAS) and Macmillan Cancer Support are working in partnership and support a programme to develop a better understanding of people living with cancer and patient care pathways.

Two million people in the UK have had a cancer diagnosis, predicted to increase to four million by 2030. However, our understanding of the cancer survivorship population is incomplete. The programme will use data and information to push the boundaries of understanding of the whole cancer population, now and in the future, of the impact and costs of cancer and it’s treatment on patients, the wider community and the NHS.

This work aims to enable health and social care services to extend the usage of this information to improve the care, experience and outcomes for patients by designing, testing and implementing better models of delivery.

Macmillan Cancer Supports’ ambition is to reach and improve the lives of everyone affected by cancer and inspire millions to do the same, and do that by providing medical, practical, emotional or financial support and pushing for better cancer care. The NCRAS coordinates and develops analysis and intelligence to drive improvements in prevention, standards of cancer care and clinical outcomes for cancer patients.

In partnership, our programme will provide both broad and detailed intelligence allowing us to identify inequalities and so effectively target, support and ensure the best outcomes for people living with cancer.

The objectives of the work plan are to:

To provide high quality information on health and its determinants to decision makers who can make changes to improve the lives of the cancer population.
To describe quantitatively the disease burden of cancer across the whole of the cancer pathway and to develop a strategic approach that will pave the way for large scale analysis across cancer types.
To identify and develop new routine ‘cancer population statistics’.
To understand the needs of the cancer population, the health and social impacts of cancer (including cancer recurrence and metastatic disease) and the consequences of its treatment.
To understand the ‘cost of cancer’. Understanding the cost of providing pathways and model the cost of optimal pathways of care.
To understand the linkages between clinical outcomes, patient experience and PROMs (Patient Reported Outcome Measures).
To scope data requirements for social care and identify potential sources for the development of these datasets (including the extent of provision and cost of providing social care).
To continue to develop relationships across UK nations and to access data and influence the range and depth of data collection and quality of recording, understanding what data is available and what the gaps are.

For more information about the partnership and work plan, please download Macmillan-NCRAS work plan - Understanding the cancer population

To contact us, please email NCRASEnquiries@phe.gov.uk